Our Story

Our Story

Rare Trait Hope Society was founded in Vancouver, British Columbia in September 2020 to raise funds for the development of a gene replacement therapy for Aspartylglucosaminuria (AGU), an ultra-rare neuro-degenerative disease that affects about 150 children worldwide. The Society is working with Rare Trait Hope Fund, a 501(c)(3) registered charity in the United States, Rare Trait Swiss, a registered non-profit organization in Switzerland, Association Vaincre L’AGU, a registered charity in France and Dona Esperanza which is co-ordinating with Fundacion Columbus, a registered non-profit organization in Spain. Together we are raising money to fund expenses associated with the preparation and implementation of an upcoming gene therapy clinical trial.  To achieve this, we need to raise US$2 million, $500,000 of which we are raising here in Canada.

Background