Our Story

Our Story

Rare Trait Hope Society was founded in Vancouver, British Columbia in September 2020 in order to raise funds for the development of a cure for Aspartylglucosaminuria (AGU), an ultra-rare neuro-degenerative disease that affects about 200 children worldwide. The Society works together with Rare Trait Hope Fund, a 501(c)(3) registered charity in the United States, to raise money to fund expenses associated with the preparation for and conduct of an upcoming gene therapy clinical trial.  Together, we need to raise US$2 million and we hope to raise $500,000 of that here in Canada.

Background