Help children suffering
from ultra-rare, fatal diseases.
You can make a difference for children suffering from ultra rare diseases. By supporting Rare Trait Hope Society, you will fund research projects and help develop treatments and cures for children, helping them to live their best lives.
NEWS
April 29th, 2026
Our global, grassroots effort brings new hope to families affected by Aspartylglucosaminuria
We are thrilled to share that the U.S. Food and Drug Administration (FDA) has given approval to the start of a clinical trial for the treatment of the ultra-rare disease Aspartylglucosaminuria (AGU) 🧬✨
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